4 Annie Girl is a non-profit organization raising awareness of SMA or Spinal Muscular Atrophy.
4 Annie Girl FAQ
Q: What is SMA?
SMA is a terminal and degenerative disease that causes weakness and wasting of the voluntary muscles in infants and children. Simply put it is the lack of protein. SMA is the #1 genetic killer in babies.
Q: How does SMA occur?
SMA is an autosomal recessive disease. Meaning that two copies of the abnormal gene (SMNI) must be present for SMA to occur. So couples that both carry the gene would have a 25% chance of having an effective child. 1 in 40 persons are unknowingly carriers.
Q: How do you know if you are a carrier?
A simple blood test can determine if you are a carrier of SMA. There are also saliva tests that can be performed.
Q: Who is Annie Girl?
Annie was the daughter or Eddy and Nicole Grimes who was born from a healthy, planned pregnancy. Annie was diagnosed when she was 4 mos. old. The Grimes' have no family history of SMA and did not know they were carriers. 4AnnieGirl.com is determined to raise awareness so other families do not have to face the heartbreak. We also raise money for the National Organization, Families of SMA in hopes to finding a cure.